The Story of Inara

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FALL 2016: THE BIG UPDATE!

Guess who’s walking!

Inara

That’s right. We were once told that Inara wouldn’t survive her first year. We were once told she would never stand. We were told she would never walk. She is now taking tentative unassisted steps and lots of assisted steps. Over a year seizure-free and ready to take on the world.

Here she is standing:

inara1

inara2

And, with a little help from her wheelchair, exploring the world. Girls in wheelchairs explore the world, too. Especially this one!

inara4

Inara triumphant!

THE BACKSTORY

inara3

My Daughter, the Fierce-Hearted

Inara is partially blind, with scarring in her brain and a history of severe seizures. She is also one fierce, dragon-hearted little girl. She is named for a character from Firefly who approached all things in life with both grace and intensity; nothing keeps Inara down, and in our home, she is triumphant.

Readers who are new to my work have asked me lately about Inara, and I thought I would collect the pieces of her story here.

Woven into her story is the story of my books and how I came to bring them to you; the story of my wife and our love for each other and for our children; and even the quiet patience and exuberant big-sisterness and caring of River, my oldest daughter. You can read about Inara and her family here:

How the Kindle and KDP Helped Save My Little Girl
Inara and the Giraffe Club
We Know the Name of the Wound
Inara_Hospital_4

Inara and I cope with the more difficult moments by sharing stories:

Preparing for the Long Dark of Moria
The Night I Stayed Up All Night with My Daughter

A November, 2014 update:Helloworld_Inara

“Update on Inara’s Story; Also, Why Late at Night When Everyone is Asleep I Write So Fiercely and Fast”


A February, 2015 update:

“Childhood on Fire at the Litore House”

A March, 2015 update:

“Dragon at the Hospital: Day One”

March 26, 2015:
“Big Update About Inara!”

December 29, 2015 update:
Today, as I update this blog — today is December 29, 2015 — Inara is growing more able by the week. She has been seizure-free for some time; we hope to keep her so, though we know each month is a new creation. Yet we are so inspired by her. Though she isn’t speaking yet, she has developed a deep vocabulary of nonverbal communication — both gestures and sounds — and she can communicate her needs and feelings. She is artistic, painting with her hands and feet. She is standing (at one time we were told she would never stand) and taking a few assisted steps; we are confident that sometime in 2016, she will be able to do at least some walking. She has more fine motor and problem solving skills now. She is tempestuous, capable of fierce tantrums and fits of uncontrollable giggles. And she is smart. Dear readers, she is so smart. I am so proud of her.

As they say on Firefly: Inara has done the impossible, and that makes her mighty.

I am so proud of her and her sister. And also so grateful for all those — readers, friends, doctors, nurses, specialists, church members, fans and Patreon members — who gathered around us when things were touch-and-go. You all made an enormous difference.

Lives of Unstoppable Hope

I wrote down a lot of what I felt as a father during the dark season. In 2015, I released that memoir as Lives of Unstoppable Hope. I’ve been told that the book is inspiring; a pastor in Oklahoma ordered copies for his entire church. Though the framework for the book is a study of the Beatitudes in ancient Greek as a way to explore “hope,” I’ve been told by a diversity of readers — religious and atheist alike — that the book was inspiring and moving.

Lives of Unstoppable Hope is the story behind all the stories I have written.

If you would like to check it out, here it is:

UnstoppableHope_Ebook_Final_1000

In friendship,

Stant Litore and family

25 thoughts on “The Story of Inara

  1. iris arellano

    Hi Stant,

    Thank you for sharing this with us, it must be difficult for you and I cannot begin to imagine how you and your wife feel. But I can say that through this blog, and Facebook you give us; your readers a glimpse of who Inara is and who you are as an entire family. I can only be both thankful and honored to be part of a team of warriors such as you, your wife, your daughter River but specially Inara, the girl with an amazonian soul, and the strength of a mighty giant. I will do what it is in me to support your books, your blogs and your page. I believe through the energy of your dear cyber friends we can generate enough good vibes, and good deeds and channel them towards the rebirth of your little warrior’s health, like a phoenix that comes back from ashes.
    Our prayers, good thoughts and meditation will be for you and those whom you hold dear to you.

    Be blessed

    Iris

    Liked by 1 person

    • Iris, thank you.

      It means a lot to us — the support, and the encouragement!

      Little Inara is indeed a warrior. Her middle name (cahira, Irish for warrior) was well-chosen!

      Thank you for your voice of support and strength for my family!

      Stant

      Like

  2. Steve Murray

    My thoughts and prayers go out to you, your family and especially Inara! I know what it’s like overcoming tremendous adversity and it sounds like this little girl has a heart of gold, the strength of a lion and the tenacity of a wolverine.
    I broke my back at the age of 22, paralyzed from the waist down, told I would never walk again. Pishaw I said to the doctors. Five years later I rose from my wheelchair, forever to use a cane, but happy for what I had achieved. I’m 59 now with 23 back surgeries to my credit and a full spine plated and screwed together. The most important thing I credit to my recovery is optimism and extroversion. Little Inara has a whole life ahead of her to prove the naysayers wrong. Good luck young lady! You too can win with a strong family, a positive mind and the belief that anything is possible if you believe.

    Like

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